Katen's story

My local Hindu temple have been encouraging me to speak about living with an invisible condition for many years. In January, I decided to speak to my Hindu community about living with Ulcerative Colitis on India Republic Day. There were over seventy people there! I was a little nervous to begin with, but I had a lot of people encouraging me.

I explained in 2016 how I nearly lost my life to this invisible disease and the importance of raising awareness about living with Crohn’s and Colitis within the Hindu community.

After my speech people asked me questions about living with Colitis and shared their experiences of living with diseases. Five people asked for my phone number because they wanted to talk or text me in private, including a couple of mums who were concerned their daughters were suffering with symptoms of Crohn’s or Colitis. I had a lot of positive feedback from everyone, it was a great success!

This topic is taboo in my community but encouragement from my Hindu temple allowed me to talk. Talking raised awareness and helped others who were concerned they or someone in their family might be living with these invisible conditions.